Saturday, 19 October 2013

Time to take heed

This week some of the dreaded ME/CFS symptoms have been returning;  twitching muscles, heavy feeling in my limbs, restless legs and the wrong words coming out or I've been getting words or letters mixed up when I talk. The latter is probably not so noticeable to others but it embarrasses and frustrates me although I'm at the stage now where I can laugh about it. What else can you do! I've also noticed that my thoughts are slipping into a more negative way of thinking, I've been a bit more irritable and my mood has dipped a bit. All warning signs for a relapse if I don't catch it quick enough.

Action Plan:

  • plenty of sleep
  • healthy diet - reduce sugar, caffeine and alcohol
  • meditation at least once a day
  • mindfulness during the day and gently challenging my thoughts 
  • scaling back on the activities (never an easy one looking after an active four year old but good old mumsnet and netmums always have tips on activites to do indoors during Autumn). 
I'm not always sure what definitely causes these blips - do any ME sufferers??!! But I'm reckoning walking too far last weekend, the change in season, family stress (I wont get into that...) and maybe pushing it slightly at yoga this weekend have been the contributing factors. 

Always such an inconvenience when you think you are doing ok.... 


  1. So happy you commented on my blog as now I've found yours! I totally share the frustration and inconvenience of flaring symptoms when you think you've done everything as well as you can to manage it. SO FRUSTRATING! Sounds like you've got a good approach to it though. I hope your action plan helps ease your symptoms. I look forward to reading more of your posts. Jess x

  2. I've been having some signs of a relapse too mostly the same as yours, I am wondering if it's the change in season as this time last year I was entering an awful stage - my worst yet so I will be taking your steps into consideration and making sure I don't push myself too far over the edge. I hope things don't get any worse for you x

  3. I'm not sure I'll ever truly get the hang of proper pacing, not when there are too many things that I want to do. (And I don't have a wee bairn!) Well done on spotting the signs early; hopefully your extra care will help you stay on track. Your posts are an inspiration, and a reminder for me. ;)

  4. I know Jo, its really hard but I've been trying to be mindful of what I am doing in a day so I at least have a balance of time spent exerting myself and having some rest time too :)

  5. Sounds like a good plan! Hope you're doing well!